No Rejection For Noah!

It looks like Noah is NOT going through rejection and that is great news!! Praise God for that...but do continue to pray for Noah because he is still so very sick. The docs are just not completely certain what is going on with the little fellow. Let's pray that they figure some things out and that Noah's edema (swelling) goes down. He's so puffy that his little eyes are swollen shut...folks, that is so hard for a mommy to have to see so let's pray for Crystal too. Be sure to go read Crystal's complete update...

Also, don't forget Noah's big sister and his Dad.

Chest Tube For Noah

UPDATE: Noah is on his way back to the cath lab so let's be praying about that specifically....you need to go check out his fluffy after-bath hair...so cute!!


The docs had to place a chest tube today. Hopefully, this will help Noah's lung. There will be a TRALI specialist stopping by to see Noah today...let's be praying for Noah's lungs and for the specialist to be able to figure out a great course of action!

BlogLand...We Have Eyes!!

Look at those little sweet Noah eyes! They make me want to scoop him up and give him a big ol' squeeze...I think that would probably be frowned upon though since he is still on the vent and healing! lol!! Really, folks, that is one of the hardest things when your baby is sick...not being able to hold him all the time...

Be sure to head on over to the family blog and read Crystal's wonderful testimony. She is an amazing woman and so very strong. Noah is blessed to have her as him mommy!

Urgent Prayer Request For Noah

Noah's mom wrote this yesterday. Please take some time to go encourage this family and let's storm Heaven with prayers for little Noah!! Noah recently received a heart transplant. Feel free to grab the "Pray for Noah" button to place on your blog...just make sure to save it to your computer...

Sunday, July 29, 2007

TRALI

Noah is back in the ICU on a ventilator. They are keeping him very sedated at the moment as they are trying to get an art line then tomorrow they will do another PICC (on top of the 2 IVs he currently has).
They believe the blood transfusion he received caused him to develope TRALI : Transfusion Related Acute Lung Injury. I'm typing this on my phone so I can't link to any information on it but if you Google ''TRALI'' it brings up lots of info on it.
Right now he' covered in hives on the inside and the outside. Benedryl doesn't help and they started Steriod treatment which will also treat the rejection they now believe he's been having (sometimes a mom just knows). The steriods are also causing high blood sugar so they have to give him insulin on top of all the other drugs.
He's in criticle condition and is super super sick. Infection, Rejection, Fluid imbalance, and now TRALI.
This feels like it did the day before he got his heart. When he was really sick and we didn't know when he would get a heart and if it would be in time... Feels more like a sick road instead of a recovery road. But Noah is strong. He's proven time after time that he can beat the odds and pull through. He's my hero. And if he can be strong, then so can I.

Links about TRALI:

TRALI--wiki
MedScape
American Red Cross

Do You Know What This Is?

This would be our itty bitty Noah after his HEART TRANSPLANT!!!! I am thrilled beyond belief to be able to tell you all that Noah received his new heart on July 7th. The last update I saw he was critical but stable.

Now folks, it's time for us to switch our prayer focus...let's pray that Noah's body will accept this new organ and that he will not have any complications due to rejection. Continue to pray for his family, what an incredible roller coaster ride! I am so excited!!

Let us also praise and thank God for this heart and also for the beautiful act of the donor family. Also, let us remember that family who is grieving so much right now....

I know Noah's mom would love for you to visit Noah's blog!

Noah Moves Up the List!

I’ve just read that Noah has been bumped up on the transplant list! This news is really good but also not so good…ahhhh….life on the transplant list. You see, the sicker Noah gets then the higher he goes up the list. Right now he is listed as a 1A…I’m not sure how the heart list is set up but that’s as high as you can be on the liver list. Also, Noah may need to have another surgery that would help protect his lungs.

So, all you prayer warriors out there, let’s all pray that his mom gets the “call” really soon and that this potential upcoming surgery will be successful.

Also, Noah’s mom has been meeting people at the Ronald McDonald House who are post-transplant. What a huge encouragement this is to her…I thank God for places like the RMH and I thank Him too that he has brought these people across Crystal’s path. I love how God works!

Be sure to zip on over to Noah’s blog for all the details!

Meet Noah!

Meet Noah! This little cutie patootie is just 3 weeks old and boy let me tell you, he's had an eventful three weeks so far!

Noah was born with a congenital heart defect called Critical Aortic Stenosis. He has been listed for a heart transplant in Denver.


Let's all pray for this little guy and his family. As of right now, Noah and his mommy are awaiting his transplant in Denver. The rest of the family is back home in Utah. Noah has a big sister just a few years older so be sure to say some prayers for her also....things like this are tough on sibs.

Please visit Noah's blog and be sure to leave comments for him and his mommy. It's such an encouragement to read these comments!