Thursday, May 25, 2006

Five for Friday...Grayson

Here's five pictures of the always cute Grayson! Grayson has been doing well lately...not so fussy. He has had some meds changed and this seems to be making a huge difference. Please continue to pray for Grayson and his family...they are still dealing with his hemangioma.






Look what a big boy Grayson is...holding his head up like that!!






OK...so who doesn't want to scoop this little guy up and cover him with "sugars"??





I wonder if Grayson's big sister Olivia was around...I bet so because he's got a good grin going!!





This is Grayson's hemangioma. You can see why it would be tough to deal with...nonetheless, he and his mom are troopers and they are doing what's necessary to make him comfortable. He continues to have laser treatments for the hemangioma...surgery may be necessary in the future.






Judi....Thank you so much for allowing me to post pictures of Grayson...it is a privilege to do so! Grayson's mom and dad have entered the blog world with their very own blogs...go visit them when you can!



Mommy of Two



That's No Hill For A Climber

Saturday, May 20, 2006

CURRENT WISH LIST

Fabric…scraps or yardage, does not need to be kid prints.
Tea sets…for children. We’ll be sending these to siblings.
Cards…happy, encouraging cards!
Volunteers to help cut fabric
E-mail me if you can help us out with any of these requests and I'll get back with you concerning a "pick-up" place and time!

Thanks in advance!

Prayer for Emma




Isn't this such a sweet picture of Emma sleeping! She is such a doll...I would have a hard time not "squeezing" her!! (((((Emma))))).....sending hugs your way!!



We need to say extra prayers for Emma's tummy right now. She also has gone back up on her vent settings and is taking a bit of steroids...pray that these steroids will do their job and led Emma to healthier lungs!



Here's a quick list:




  • tummy issues resolved



  • be able to wean on vent settings



  • that the steroids will be effective



Wednesday, January 18, 2006

The Strength of an Egg

I found this story over at Lisa's CB site.




The Strength of an Egg


by Juliet Freitag




Parents of children with cancer, or really any serious condition, are often referred to or viewed as having strength "like a rock." Albiet flattering,it isn't quite true. It is more like the strength of an egg. An egg, you ask? Yes!



If you'll think about it, you'll see my point. An egg has a polished, smooth outer appearance, with no cracks or weak spots visible. It seems almost inconceivable that the inside might not be so smooth or solid.



Most children, at some point are shown the famous egg trick. An egg set at just the right angle can withstand enormous amounts of pressure and cannot be cracked or broken. Yet the same egg, tapped gently at an ever slightly different angle, will break. The contents, once so neatly concealed, will come spilling out. The no longer perfect shell will be crushed. It looks so fragile that it seems inconceivable that it ever held any strength.



A rock, on the other hand, is solid all the way through. To break it is almost impossible. If you succeed, you will find that there is nothing inside but more rock.



It takes a lot more than pure hardness to hold the hand of hope. Parents of [medically fragile] children are not solid all the way through. We hurt, we fear, we cry, we hope. It takes a very careful balancing act to keep the shell from being shattered. "Balancing an egg" while running a household, going for doctors' visits and hospital stays, keeping the family together, and holding on to the constantly unraveling ties of your sanity can be very tricky indeed! Occasionally, the angle will be off and the shell will break, shattering hope and all the neatly secured appearances of a truly fragile existence.



Unlike Humpty Dumpty, though, parents of [medically fragile] kids will pick themselves up and put themselves back together again.