Thursday Thirteen #2: Syndromes I Would Like to Know More About

Syndromes are diseases or disorders that have more than one identifying feature or symptom.

Here's a list of syndromes that I would like to know more about. This is not my entire list! lol!

• Prader-Willi Syndrome
• Turner Syndrome
• Kawasaki Syndrome
• Apert Syndrome
• Cri du Chat Syndrome
• Pierre Robin Syndrome
• Treacher Collins Syndrome
• Alagille Syndrome
• MoyaMoya Syndrome
• Progeria Syndrome
• Marfan Syndrome
• Klinefelter S Syndrome and....
  

• Short Bowel Syndrome--of course I will always be keeping up with what's happening with the treatment and prevention of this syndrome that affected Gus.

Plastic Blood

I knew that there were artificial blood products being tested but I had no idea about this plastic blood. Apparently, the plastic blood molecules have the same basic structure of hemoglobin molecules and the oxygen is released and used just like with the hemoglobin molecules. This blood alternative is cheap to make and light to carry...it can be reconstituted with water. It has been developed to aid people in emergency situations.

I think it's a good idea in emergency situations. Gus had several blood transfusions daily and I'm not sure I would want the plastic blood used then. However, if there was very little blood available for him I certainly wouldn't say no!

Interesting....

Friday Link Love

I usually do a link love post over on my main blog, Up the Hill Gang. This week I've decided to start a Friday Link Love here at Gus' Gang! These are a few blogs I found this week while out visiting...Enjoy!

Miracles and Dreams...chocked full of information and stories...very nice!
Our Journey...Miracles Happen...wonderfully written blog and the tag line is wonderful!
Sweet/ Salty...will make your heart weep and rejoice at the same time...you'll need tissue...

Share A Square!

Just wanted to let all of you crocheters know about Shelly's "Share a Square" project for Camp Sanguinity which is a camp for cancer kids. I'm going to be putting together a box from Gus' Gang to send out to Shelly.

If you want to join me for an afternoon of "hooking" (bwahhahhaa!!) let me know and I'll plan a day for us! Gus' Gang will supply the yarns so there will be no extra expense for you...just the gas money to get here! lol!! I'll even make sure we have chocolates for good eats...even better yet, I'll have Jake cook for us! He's a fantastic cook!!

If you want to by-pass the "hooking" with friends, the chocolates and Jake's tasty nabs and you just want to crochet on your own...by yourself...all lonely and such....with no one to talk to....and no chocolates....you can check out all the details over at Shelly's blog.

Well, actually, go check out her blog anyway because it's a gooder!!

Let me know if you want to join me.....

Urgent Prayer Request!

Earlier this morning I received a prayer request for a little girl named Emma who has a very high fever that will not come down. Emma's parents are missionaries in Haiti and there is no hospital near them. Please pray for Emma's healing and also that her parents will be surrounded in peace as they all go through this scary time.

I will update as I get more info....

Updates on all the Cuties!

Again...I have been a slacker...I promise to try to be a better up-dater!


Izzy continues to do very well. All of her therapies are working well and she is smiling and vocalizing a lot more. How exciting for her and her family! School is out for the summer but she will be attending a summer program! Continue praying for Izzy's complete healing!



Damon is two!!! And he got a tractor for his birthday!! I just know he was absolutely thrilled! Damon's liver numbers are looking fabulous and he now weighs 16 lbs. I am so happy with all these stats! I'm still praying for God's protection over this little guy's liver and I would love for you all to do the same!

I'm not sure why I can't fix this big ol' font...sometimes Blogger bites!

Grayson is now reading! He's like a genius or something! lol!! I've heard that he likes the ladies and has never met a stranger. Currently, Grayson is dealing with some fluid that is hanging out in his ears. He'll be going to an ENT soon so let's pray that this pesky little problem can be cleared up!

I'm sure each of these mommas would love to receive encouraging words from you all. You can visit their sites from the sidebar!

Re-Mission

I came across this link just a bit ago for a game geared toward teens and young adults who are battling cancer. This is a free game you download.

Basically, you lead Roxxi, the nanobot, through the body and she fights and destroys the cancer cells. I'm a little disappointed that Roxxi has a huge boo-tay and is very chesty! I also noticed there was a foul language warning on the label...hmmmm...

The game is called Re-Mission.

I haven't downloaded it because I'm trying not to load up my computer...it's new as of last week! lol!!

What do you think???

This Makes Me Sad

I'm sad for the families that lost their loved ones in this crash but my heart is just breaking for the family that was waiting on the organ for transplant. It's all just so really sad....for everyone involved...

UH.....where is the feed I embedded??? It has changed! This was the story about the transplant team that died in the plane crash...sorry that your getting a hotel fire feed. But, that is really sad too.....